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Frankly Speaking about Lung Cancer

8. Valuable Resources

National Organizations

Lung Cancer Alliance
888 16th St, NW
Ste 100
Washington, DC 20006
Hotline: (800) 298-2436 (Eastern Time)

Lung Cancer Alliance is a national organization dedicated to helping people living with lung cancer, or at risk for the disease. They mail information, staff a telephone Hotline and have a comprehensive website, plus a peer-support Phone Buddy program, and advocacy opportunities during Lung Cancer Awareness Month activities in November.

The Wellness Community—National Office
919 18th Street, NW, Suite 54
Washington, DC, 20006
1-888-793-WELL

Provides support groups, educational programs, stress management, nutrition, and exercise programs, and social activities at no charge for people with cancer and their families, with 20 locations nationwide and on the Internet. Specific lung cancer support groups are available in some locations.

 

American Association for Cancer Research (AACR)
Public Ledger Building, Suite 816
150 South Independence Mall West
Philadelphia, PA 19106-3483
(800) 477-7127; (215) 440-9300

Supports public awareness of recent progress and future opportunities in cancer research.

American Association for Respiratory Care (AARC)
11030 Ables Lane
Dallas, TX 75229
(972) 243-2272; Fax (972) 484-2720

Can help patients find a respiratory therapist and information on lung care, home oxygen therapy, and continuous positive airway pressure (CPAP).

American Cancer Society, Inc. (ACS)
1-800-ACS-2345 [(800) 227-2345]

Provides referral to local American Cancer Society offices for patient educational materials, support programs, information, and referrals.

American College of Surgeons
633 North Saint Clair Street
Chicago, IL 60611

Provides verification of whether your surgeon is certified in a surgical specialty.

American Institute for Cancer Research (AICR)
1759 R Street, NW
Washington, DC 20009
(800) 843-8114

Supports research and provides public education materials in the area of diet, nutrition, and cancer.

American Lung Association
1740 Broadway, 14th Floor
New York, NY 10019-4374
(800) LUNG-USA, (212) 315-8700

Dedicated to preventing lung disease and promoting lung health.

American Pain Society
4700 West Lake Avenue
Glenview, IL 60025
(847) 375-4715

Publishes the “Pain Facilities Directory” with information on more than 500 specialized pain treatment centers across the country.

American Society of Clinical Oncology (ASCO)
1900 Duke Street, Suite 200
Alexandria, VA 22314
(703) 299-0150

This national organization of oncologists and researchers is dedicated to cancer prevention, treatment, education, and research and provides concise cancer information through the Internet to the public.

American Thoracic Society
1740 Broadway
New York, NY 10019
(212) 315-8700

Can help patients locate a board-certified thoracic (chest) surgeon.

Association of Cancer Online Resources (ACOR)
173 Duane Street, Third Floor
New York, NY 10013
(212) 226-5525

Provides free information and Internet listserv discussion groups including:

  • Lung-ONC: ACOR group discussion offering medical information/support for all types of lung cancers. Lung-BAC: Discussion group for those diagnosed with bronchioloalveolar cancer.
  • Lung-NSCLC: Discussion group for those with non-small cell lung cancer.
  • Lung-SCLC: Discussion group for those patients with small cell lung cancer.

Cancer Care, Inc.
275 Seventh Avenue
New York, NY 10001
(800) 813-HOPE [(800) 813-4673] (212) 302-2400

Provides free counseling, support groups, education, and referral to cancer patients and their families to help them cope with the psychologic and social consequences of cancer. Offers toll-free telephone support groups for people with lung cancer and their caregivers.

Cancer Hope Network
2 North Road, Suite A
Chester, NJ 07930
(877) HOPENET [(877) 467-3638] (908)-879-4039

Offers one to one support to cancer patients and their families undergoing cancer treatments from trained volunteers who are cancer survivors.

Choice in Dying
1035 30th Street NW
Washington, DC 20007
(800) 989-WILL [(800) 989-9455]

Advocates recognition and protection of individual rights at the end of life. Provides counseling regarding preparing and using living wills and durable powers of attorney for health care.

Corporate Angel Network
One Loop Road
Westchester County Airport
White Plains, NY 10604
(914) 328-1313

Provides free plane transportation for cancer patients going to and from recognized cancer treatment centers by using empty seats aboard corporate aircraft operating on already scheduled business flights.

It's Time to Focus on Lung Cancer

Established in the Fall of 2000 by a group of nonprofit organizations, this lung cancer awareness campaign is dedicated to improving care for those with lung cancer by disseminating up-to-date and accurate information that encourages early diagnosis; shares developments in screening and treatment; and offers support to lung cancer patients and their loved ones.

MAMM
54 West 22nd Street, 4th floor
New York, NY 10010
212-243-2916

National Cancer Institute (NCI)
1-800-4Cancer

Provides comprehensive information related to specific cancers like lung cancer, cancer treatments, and coping strategies including information about clinical trials for lung cancer and a listing of cancer centers.

National Coalition for Cancer Survivorship
1010 Wayne Avenue
Silver Spring, MD 20910
(888) 937-6227 (toll free)

Raises awareness of cancer survivorship through publications. Provides education to eliminate the stigma of cancer as well as advocacy for insurance, employment, and legal rights for people with cancer.

National Familial Lung Cancer Registry
Johns Hopkins University School of Hygiene and Public Health
615 North Wolfe Street, Room 6309
Baltimore, MD 21205
(410) 614-1910; Fax (410) 955-0863

Seeks families with 2 or more people diagnosed with lung cancer for a tumor registry that is organized to further the understanding of the causes of lung cancer beyond smoking.

National Hospice Organization
1901 N. Moore Street, Suite 901
Arlington, VA 22209
(800) 658-8898; (703) 243-5900

Hotline provides information about end-of-life care and helps callers locate a hospice in their area.

National Patient Air Transport Helpline
P.O. Box 1940
Manassas, VA 20108
(800) 296-1217

Makes referrals to charitable, charity-assisted, and special discounted patient medical air transport services based on an evaluation of patients’ needs.

Oncolink
University of Pennsylvania Cancer Center
3400 Spruce Street, 2 Donner
Philadelphia, PA 19104
(215) 349-8895

Provides information about specific types of cancer, updates on cancer treatments, and news about research activities.

Patient Advocate Foundation (PAF)
753 Thimble Shoals Blvd., Suite A
Newport News, VA 23606
(800) 532-5274

Provides patient education relative to managed-care terminology and policy issues that may affect insurance coverage, legal services, and counseling to resolve job and insurance problems.

Pulmonary Hypertension Association
850 Sligo Avenue, Suite 800
Silver Spring, MD 20907
(800) 748-7274

Provides information for lung cancer survivors with PH and encourages research into the disorder.

Quitnet
Boston University
121 Bay State Road
Boston, MA 02215
(617) 353-2000

A 24-hour Internet support group and information center for those who wish to quit smoking.

Society of Surgical Oncology
85 West Algonquin Road, Suite 55
Arlington Heights, IL 60005
(847) 427-1400

Can help patients locate a board-certified thoracic (chest) surgeon who specializes in lung cancer.

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