I Thought I Was Invincible


Roberta Willet_6.29.16

Roberta and her dog, Gracie.

By Roberta Willet

I have been a registered nurse for 30 years.  In those 30 years, I was exposed to every disease under the sun and never got sick.  I really thought I was invincible.

Four years ago, my husband and I were days away from moving from New York to a new home in New Jersey. I decided to get my annual doctor’s visit out of the way before the chaos of the move kicked in. I had a slight pain near my waist whenever I plugged something in, nothing major, but decided to address it with my doctor during that visit.

My doctor, who was also my employer, suggested an x-ray just to play it safe. The x-ray led to a CT scan which, to my shock and surprise, showed five nodules spread through my upper right lung. While still processing this news, a biopsy was scheduled and performed, resulting in a longer hospital stay due to my lung collapsing!

Because of the move, that could not be rescheduled, my husband and I ended up staying with friends in New York while going through this very scary process. We were still pinching ourselves…”Did that really happen?” “How it this possible?”

Roberta and her husband.

Roberta and her husband.

After going through six weeks of tests, reading frightening statistics and preparing myself for a short six months left of life, my uncle, a retired physician, suggested I go to a hospital in Philadelphia. The process was amazing, quickly organizing consultations with every doctor, nurse, physical therapist, nutritionist, naturopathic specialist they had employed.  A plan of action was designed for me and in less than a week I started chemotherapy.

I had an entire team fighting this battle with me.  After 18 chemo treatments (three weeks on and one week off) another scan revealed one small spot still on my lung. All five tumors otherwise were gone!

Cancer does not have to be a death sentence but you must take responsibility for your health.  You must be your own advocate, be partners with your medical team.  Ask lots of questions and do anything and everything you can to help your body defend itself against this horrible invasion.  Eat correctly, sleep well, and be physically active.  One of the most important things you can do for yourself is to think positive….. be optimistic.

I just celebrated my four years survival anniversary!  I am living a full life, I feel great.


If you have questions or need support along your lung cancer journey, call us at 1-800-298-2436 or email support@lungcanceralliance.org.  





A Friend for Life

Leah and Kimberly at the Huskers' game.

Leah and Kimberly at the Huskers’ game.

Sunday, August 7th is Friendship Day, a day to say “thank you” to all those special people in your life you call a friend.  We sat down with two inspirational survivors who would have never met each other were it not for their lung cancer diagnosis.

Leah and Kimberly are both young moms in their 40’s, living in Nebraska. After their lung cancer diagnosis they both took action, becoming strong advocates for our cause. They met at an awareness event cheering on their favorite team, the University of Nebraska Cornhuskers. We got their take on the friendship and how it has changed their lives.

Why do you think you became such fast friends? 

L: We are both passionate about taking up the cause for lung cancer.  We are Husker fans.  We are both moms.  We both grew up in small towns.

K: Leah and I had an instant connection. It was perfect timing as I was really needing a lung cancer survivor connection that was my age and had similar life circumstances.

What does your friendship mean to you? 

L: Kimberly is the only other person in Nebraska that I am connected with who is passionate about the cause. That is invaluable! She has motivated me to step outside the local box and think bigger about how to take our cause higher, like going to D.C. in May for the Lung Cancer Summit.  I would never have done that without her encouraging me to go.

K: I am so thankful I met Leah. I look forward to continuing our friendship and working together to fight for a cure!

Leah and Kimberly ready to storm Capitol Hill at the 2016 Lung Cancer Summit.

Ready to storm Capitol Hill at the 2016 Lung Cancer Summit.

Is there a moment in your friendship that stands out to you?

L: When the two of us went “head to head” with one of our representatives in D.C., tag teaming and working together to drive home our point. It was amazing!!!

Have your friendships changed since your lung cancer diagnosis?

L: They only grow stronger!

K: I lost one of my closest friends, and to this day do not know why that happened. But I gained a few more valuable friendships I wouldn’t have had if it weren’t for lung cancer.

What advice would you give someone battling lung cancer? 

L: Keep a positive attitude!  Never stop seeking the best path for yourself; research, question and be informed about every decision.  Don’t be afraid to seek help.

K: Respect your family and friends and their feelings towards you. In the beginning, I put up a wall and didn’t allow all of my family and friends to be involved in my treatment. I kept them at arm’s length and tried to handle everything on my own.  I didn’t realize until it was almost too late that they needed me and I needed them. And BE YOUR OWN ADVOCATE!



The Power of One

By Kristin Bramell, Director of Philanthropy, Lung Cancer Alliance

ice bucket

We spend a lot of time encouraging people to be a part of a community, and to band together to create a powerful voice. Sometimes the most powerful voice can be just a single person, though, that creates change organically. The Power of One.

Malala Yousafzai brought the world into her living room to understand the perils of attaining simple education in Pakistan. Caitlyn Jenner made transgender issues common dinner conversation. And one man changed social fundraising forever with the dare to dump a bucket of ice over your head. The ALS Ice Bucket Challenge was an instant and powerful tool that dominated social media and ultimately raised $115 million in a single month for ALS Association–well over their normal $23 million annual budget. This grand total is more than the $102 million funded by the Lung Cancer Research program in the Department of Defense since 2009!

Within a week, an entire nation was discussing “What is ALS? Who is at risk? What are the symptoms? And what can I do to help?” The concept was simple—avoid the dare and pay up, or take the dare just for fun…and still pay up. Your $10 donation became $50 when you asked four friends, who continued the chain to reach tens, then hundreds, then thousands—and researchers swooned with the advancing opportunity to create systemic change for a debilitating and deadly disease.

It is realistic that only one person needs to be inspired to spark a movement, but it requires that one person to begin the conversation.

So what does this defining moment look like for lung cancer? When will the “a-ha” moment come that creates global awareness and passion for lung cancer, which has been so stigmatized for so long? Perhaps it’s with your powerful voice. Perhaps the next big idea will be yours.

Lung Cancer Alliance is so grateful for each and every dollar that you commit to our cause. As the highest rated lung cancer charity (by Charity Navigator), and the top 1% of all charities nationwide, we promise to continue our life-saving mission for all people living with a lung cancer diagnosis or at risk. I hope you will pledge to help us meet these immense needs too. Every gift counts, and moves the needle closer to a cure.

Click here to give to Lung Cancer Alliance.

Successfully Living with Cancer

Dawn at the 2016 Lung Love Run/Walk Portland in June.

Dawn at the 2016 Lung Love Run/Walk Portland in June.

By Dawn Horner

I have always loved running. It is tough, but in a way that leaves you feeling lifted, happy and challenged all at once.  I have run in several races over the years but the most difficult one was the Sauvie Island Half Marathon in 2007, 13.1 miles, that’s 52 laps around the track! It was on the 4th of July, temperatures were in the upper 90s and the race organizers ran out of water half way through. Just as I hit a wall about two miles before the finish line, an elderly lady breezed past me, so I focused on her to try and keep up. Finishing that race was a huge relief.

Seven years later, in August 2014, I was presented with a very different physical, emotional and mental challenge, stage IV lung cancer. I was 51 years old, healthy and active. The worst part was that it took 17 months of repeated doctor visits, two misread chest x-rays and a second opinion before my cancer was found.

Once I made it through the initial shock and deep anger and frustration towards the healthcare professionals that took so long to find a diagnosis, we had to tell our kids. Believe it or not, telling them was one of the hardest elements of the whole process. Two of our children were in college and the other was starting a career on the other side of the state, I didn’t want them to stop living their lives. Once we broke the news, our family pulled together and held each other up.

I was told by a very wise young doctor that when I was in treatment, I could talk about cancer but when I went home I should leave my cancer behind. That same person also advised me to think of stage IV lung cancer as a chronic illness rather than a terminal illness. This guidance has really helped me keep this whole thing in perspective and allowed me to continue living my life.

Dawn shared her story at this year's Lung Cancer Summit in Washington, DC.

Dawn shared her story at this year’s Lung Cancer Summit in Washington, DC.

Early on in this journey I spent hours doing research on the different types of alternative medicine that were available. I changed my diet completely, leaving out red meat, dairy, coffee, wine and white starches. As time went by I learned to relax and find moderation. I’ve added coffee, red wine and a little bit of dairy back into my diet and I’m still doing great.  I was also able to maintain my exercise routine of walking, hiking and low mileage slow running.  Not only has this helped strengthen my physical health, but even more importantly, my mental health.

The best advice I could give someone recently diagnosed is to take life one day at a time and to not worry about the future. Live your life as full as you can each day, give thanks and tell those who are close to you that you love them.

To me, being a survivor means I am successfully living with cancer; it is not the end all anymore. I’ve met many people who have been living with stage IV lung cancer for a lot longer than five years. I have found strength through my family and friends, as well as meeting others who are battling this same disease.

When I first started treatment it was sort of like the Sauvie Island Half Marathon. It was not easy, I had to work at it every day, but I kept hope and found support outside myself. I’m planning to walk another half marathon in 2017, I guess I should start training soon!

The Parents of LCA

Richard Heimler (top left) with his husband and children.

Richard Heimler (top left) with his husband and children.

Being a parent is not easy work, but it comes with some wonderful rewards. Sunday, July 24th is National Parent’s Day, so we asked the LCA moms and dads to tell us what it means to them to be a parent. Check it out! 

“Being a parent opens up an entire dimension of the meaning of love. It’s one thing to love your life partner, but quite another to love your children. My three girls bring  me profound joy and are the light of my life!”
-Emily Eyres, LCA Chief Operating Officer

“Living with cancer and raising children over the last twelve years is challenging. But my children are my faces of hope. They make me smile at times when I do not feel like smiling. I am thankful to be a parent everyday but especially on National Parent Day.”
-Richard Heimler, LCA Board Member

“When you have a baby you get past the tough no-sleep crying stage and into six or nine

Kristin Bramell and her kids.

Kristin Bramell and her kids.

months and you think ‘I wish I could stop time’ and live right in this moment forever. But then you realize as your child grows to a year or two years, and on and on, that each stage is better than the last, and there are just different and new wonderful things that you can love about this amazing person you call your son or daughter.”

-Kristin Bramell, LCA Director of Philanthropy

“It’s amazing how different my two kids are — they couldn’t be more opposite either in personality or interests.  My husband and I often marvel at how we could produce two such distinct individuals but love them both so much for who they are.”
-Jennifer King, PhD, LCA Director of Science and Research

“Being a dad has been a wonderful experience…interacting with them growing from babies to ornery or sweet grade schoolers to high schoolers to college students to adults to being

Edy (top right) with her daughters, son-in-laws and granddaughter.

Edy (top right) with her daughters, son-in-laws and granddaughter.

parents themselves has been an incomparable thrill!  Every one of them makes me beam with pride! Now we have grandchildren…the thrill continues!”
-Gregg Gibson, Acting Chair of LCA’s Board of Directors

“I am blessed with two daughters. I am so proud of the women they have become and enjoy our conversations, visits and bond more than I ever expected. We keep learning so much from each other.”
-Edy Whidden, LCA Chief Administrative Officer

I Am Hopeful – You Can Be Too

By Laurie Fenton Ambrose, President & CEO, Lung Cancer Alliance

You have probably heard the hopeful and aspiring words, “Cancer Moonshot” over these past few months.  And for good reason.

It is the first time since 1971, when President Richard Nixon declared  “War on Cancer”, that a national call to action has been launched to catalyze new scientific breakthroughs and galvanize innovative public – private partnerships to bring better treatments, access to care and ultimately cures to the cancer community.  President Barack Obama, in his final State of the Union Address, put Vice President Joe Biden, who lost his son Beau to brain cancer in 2015, in charge of this new national effort to “end cancer as we know it”.  President Obama made it clear that the goal of the Cancer Moonshot was to double the rate of progress toward a cure – in other words – cut in half the time it would take to make advances in cancer prevention, diagnosis, treatment and care.

Under the auspices of the first-of-its-kind “Cancer Moonshot Task Force”, Vice President Biden has not wasted a moment in championing this endeavor.  He has traveled the country – and overseas – to engage our global community in this life-saving effort. He has brought together every federal agency that has a part to play in the fight against cancer, along with hundreds of private, philanthropic, industry, and academic sectors, including the patient advocacy community, to talk about how we can make the most of our federal funding, research and data, technology capabilities, targeted incentives, private sector efforts, and patient engagement initiatives to break down barriers and accelerate progress.

The collective determination by so many people – at so many levels – at this very moment – focused on defeating cancer — is clearly unprecedented and extraordinary.  But so is the fact that  nearly everyone has been touched by cancer in some way – which is why we cannot slow what has been unleashed.

I had the great privilege of participating in the Cancer Moonshot Summit, held at Howard University in Washington, DC, as part of a national day of action that included more than 260 events in communities across the US.  Over 350 researchers, oncologist and other care providers, data and technology experts, patients, families, and patient advocates participated in the dialogue.

The day began with a series of Cancer Moonshot Task Force announcements that featured initiatives highlighting new collaborations to advance the goals of the Task Force.  LCA is an advocacy partner on one and many others announced that day which have relevance for our community.

During the Summit I received a special invitation.  Lung Cancer Alliance was 1 of 20 organizations to meet specifically with Vice President Biden. This 1 ½ hour session allowed for a direct, robust and interactive discussion highlighting experiences, challenges, opportunities, and recommendations  for the Vice President and his team to consider in advancing new cancer prevention, diagnosis, treatment and care strategies.  I spoke about the opportunity to link patient information, images and biomedical samples together among people being screened for lung cancer at early or pre-cancerous stages and how this could accelerate research.

It was a good day.  It was an important day.  Why?  Because this day gave fuel to the Cancer Moonshot engine – further strengthening the momentum to “end cancer as we know it”.

We have reached for the moon before and succeeded in landing on its surface. I believe we can again reach for the stars and succeed in unlocking the mystery of cancer – and improve health outcomes for us all.


Cancer Changed Me…For the Better

Oregon constituents, Ginny and Dann Wonser (you may remember from the recent blog "A Letter to Those Newly Diagnosed") visiting  Senator Wyden (OR) during the 2016 Lung Cancer Summit.

Oregon constituents, Ginny and Dann Wonser (you may remember from the recent blog “A Letter to Those Newly Diagnosed“) visiting Senator Wyden (OR) during the 2016 Lung Cancer Summit.

By Ginny Hicks

I’m not very good at remembering dates but September 30, 2014 is a date I will always remember. It’s the date I was diagnosed with stage 4 non-small cell lung cancer. A surprising diagnosis considering that cancer does not run in my family, I’m not a smoker and I did not grow up in a home with second hand smoke. My husband and daughter were with me in the hospital when the oncologist, whom I had just met, gave me the news. I think we laughed and said, “You must be in the wrong room, have the wrong patient or the wrong file.” After all, I’m the one who enjoys exercise and eating healthy.

My oncologist did not have the wrong patient and I do have lung cancer. At first I felt like I was in a bad dream and I kept hoping I would wake up soon; that my life would be “normal” again. I went through all the stages of grief, mourning the loss of my life as I had known it. My greatest fear was becoming a burden to my family.

Fortunately, the stage of feeling sorry for myself did not last long. As an elementary teacher and principal for 34 years I thought of children I had known. Children who faced enormous challenges, like abuse, neglect and abandonment. These children were between the ages of 5-12. I had been living a good life and I had no room to feel sorry for myself.

I started chemo one month later, the day before my 59th birthday. For six months I went in for treatment every three weeks. My first scans showed the spot on my right middle lobe was smaller, the cancer was gone from my sternum lymph nodes and the lymph nodes under my left arm were still enlarged. I continued on maintenance chemo every three weeks, with scans showing the ebb and flow of cancer. It’s difficult to understand how I can be so sick when I feel so good (excluding a few days after chemo).

Ginny with her grandson, Hudson.

I joined the Lung Cancer Alliance to learn as much as I could about cancer. I became a Phone Buddy which brought me great joy and satisfaction. My Buddy helped me as much as I helped her. It was heartbreaking when my Phone Buddy friend died this spring. I think of her often and miss talking with her.

I see a counselor who helps me navigate the ups and downs of the cancer journey. I attend a support group, eat healthy foods, take supplements, state positive affirmations and exercise. I walk and jog and go to the gym when time permits. I have always felt better when I exercise.

Earlier this year I arrived at the conclusion that I would no longer fight cancer. I have cancer. It is part of who I am. I will most likely always have cancer but it does not define me. Fighting cancer gave cancer too much power and influence over my life. Instead, I decided to focus on living the best possible life I could imagine.  A life full of joy and happiness with anticipation of good things to come. Sure, some days are easier than others.

I am a new grandmother and my grandson is the best medicine ever. I work at staying positive, making mental lists of all I have to be thankful for and wake up each day glad to be alive. Cancer changed me…for the better.

I recently returned from the National Lung Cancer Summit in Washington, DC. It was an amazing experience, one I enjoyed very much. I met strong, positive, capable people with stage 4 lung cancer. I gained strength and momentum from them and only hope I can be as brave and courageous as they are.

I wish us all well on our journey.

For more inspiring survivor stories check out our Facebook page.

What July 4th Means to a US Major General

Fireworks of various colors bursting against a black background

By Rick Sherlock, Lung Cancer Alliance Board Member and retired Major General, US Army

As a retired Soldier, I like to pause as we approach each July 4th holiday, think about what it means, and remember it as more than another wonderful day to spend with family and friends at a barbecue or watching fireworks.

General Rick Sherlock

General Rick Sherlock

We became a nation because of the strength of our founding fathers and the citizen soldiers that dreamed of and fought for our independence.  This year, on the 240th anniversary of our Declaration of Independence, we have the greatest military forces in the world.  They are an all-volunteer force who, along with our nation’s police, fire, and emergency medical services personnel, protects our nation, our Constitution, and our inalienable rights to life, liberty, and the pursuit of happiness.

Those Soldiers, Sailors, Airmen, Marines, Coast Guardsmen, and dedicated public servants continue to dedicate themselves to protecting the freedoms we may sometimes take for granted.

If you have an opportunity, please thank them for their continued service and for the blessings of Liberty we all enjoy.

Super Vic, Man of Steel


Sara, Victor and their son, Gabriel

By Sara Elias

There are dates that hold in your memory for a lifetime; June 28th, 2008 … the day he proposed; September 26th, 2009 … the day we married; November 10th, 2012… the day our son was born. The years go by and while I can barely remember what I had for lunch yesterday, I can tell you minute for minute how things happened on those days. Where we were, what we said, how we felt; they were days of joy and memories I cherish. There are other dates in my life that have also had the same effect, I can give you a play by play of how things happened, not because of the joy that they brought but simply for the mark that they left that has forever changed my life. June 11th, 2013 … the day my husband was diagnosed with cancer.

victor and g 2

Gabriel and Victor

It was stage IV lung cancer. We got the news at 9:00am and by around noon we were in with an oncologist. We asked typical questions as we tried to wrap our brains around what was happening. It seemed unreal. We had just bought a new house three months before and our son was only seven months old. My husband, Victor, who was 40 years old at the time, was a scuba diver, he rode motorcycles and was active. Besides the cough he seemed healthy.

It was the summer that the new Superman movie was coming out… Man of Steel. Victor had been looking forward to it, and it quickly became our slogan for his fight, “Super Vic, the Man of Steel.” This was a man who swam in oceans with sharks and drove race cars. He was no ordinary man and it would be no ordinary fight.

Victor was diagnosed on a Tuesday and that Sunday was going to be his first Father’s Day. We had planned to have both of our families at our house to celebrate.  Everyone suggested that we cancel or have someone else host, that there was just too much going on for us to have so many people for a “celebration”. It was at that time that we made the decision to live our lives. To cherish every moment we have with our family and friends and not allow cancer to push us into a corner of isolation.

Team SuperVic at Lung Love Run/Walk Houston 2014

Team SuperVic at Lung Love Run/Walk Houston 2014

We continued this mind set throughout his journey and I encourage others to do the same. Slow down a bit, have lunch with your spouse, stay up late with your kids, call your best friend and smile at a stranger. Don’t wait for something to rock your reality to remind you how precious our lives are.

On May 27th, 2016 a new date was forever marked on my mental calendar. The day my husband’s battle ended; just two weeks shy of his three year diagnosis and three weeks before Father’s Day. And while this Father’s Day he will not be here with us physically, his spirit will be strong. Our family and friends will gather at our house to celebrate fatherhood. For all of the men who have played a role in our lives and for the ones that will be like a father to our son. Nothing can break the bond and love we have for our family and nothing shows more love than continuing to honor his spirit by living our lives to the fullest.

Lung Cancer Highlights from ASCO

This past weekend Chicago hosted the annual “Super Bowl” of cancer meetings, the ASCO (American Society of Clinical Oncology) Annual Meeting. Over 35,000 attendees learned about cutting-edge clinical cancer research for many different types of cancers. Here are the key lung cancer highlights you need to know.

Small Cell Lung Cancer

Some of the most exciting news came from possible new treatment options on the horizon for small cell lung cancer (SCLC)! No major treatment advances have been seen in SCLC for the past 30 years, but we are hopeful that this will soon change.


Rova-T study results showing that the drug is most effective for patients whose tumors have DLL3.

Rova – T: One of the highlighted presentations was the results of Phase I clinical trial on a new drug named rovalpituzumab tesirine (aka “Rova-T”).  This drug is an antibody-drug-conjugate which means that a targeted antibody takes a “warhead” or toxic compound right to the tumor cells.

The antibody in this case targets the DLL3 protein and the data clearly showed that the drug is most effective for patients whose tumors have DLL3 (see photo).  This is about 70% of people with SCLC.  Based on the promising data from this study, a nationwide Phase II clinical trial called TRINITY is now accepting patients whose cancer has grown after two rounds of prior therapy (click here for more information). All patients will have a test to confirm their cancer has DLL3 protein.  If it gets approved, this could be the first targeted therapy for small cell lung cancer.

Immunotherapy: We have been asked frequently on our Opdivo blog if immunotherapies are being used in SCLC.  There are a number of ongoing clinical trials and now there is some early data. A trial was presented that compared Opdivo (nivolumab) with two combinations of Opdivo and Yervoy (ipilimumab) together at different doses.  There is a reason to think a combination could work as Opdivo and Yervoy are currently approved together in metastatic melanoma.

Opdivo alone resulted in a 10% response and the combinations resulted in a 20% response, although there was more toxicity (side effects) when using both treatments at the same time. Similar to non-small cell lung cancer (NSCLC), the patients who responded well showed long-term responses. One of the dose combinations is being moved into larger, randomized trials. So consider this early days for immunotherapy in SCLC, but the speaker referred to it as “quite hopeful” for the future.


Non-Small Cell Lung Cancer

A lot of the work presented in NSCLC focused on new Targeted Therapies.

Over 35,000 attended the annual ASCO conference.

Over 35,000 attended the annual ASCO conference.

ALK: One of the most notable studies we saw compared the ALK inhibitor, Alecensa (alectinib) to Xalkori (crizitonib) for first-line treatment of cancers with an ALK mutation.  This trial was done in Japan and it has worldwide data that has not yet been presented.  However, in this trial of about 200, patients on Alecensa both survived longer and had fewer side effects than those on Xalkori.  So this drug may become the new standard of care for ALK+ patients.

It is important to note that Alecensa and a new drug called brigatinib can enter the brain to fight brain metastases.  Brigatinib is not as far along in development, but data presented in the same session showed it may also be an effective therapy for cancers with ALK mutations.

EGFR: Companies are developing new generations of therapies that inhibit EGFR better and/or can work after cancer comes back on EGFR therapy.  Early data was shown for two drugs that demonstrated some activity and success in different types of hard-to-treat metastases (leptomeningeal and brain).

Other mutations – BRAF and MET: There are also new drugs and drug combinations being studied for other mutations in lung cancer.  For patients whose cancer has a mutation in the BRAF gene (at a specific site called V600E that happens in 1-2% of NSCLC and is very common in melanoma), a combination of two drugs called Taflinar (dabrafinib) and Mekinist (trametinib) was studied. This combination is already used in metastatic melanoma. This is an early time point and a small study, but there was a 63% overall response rate showing that this is a promising combination in NSCLC too, although there was a high rate of side effects.

For patients with MET mutations (in a spot called exon 14, found in 3-4% of nonsquamous NSCLC and also in 20-30% of sarcomatoid carcinomas), early data (only 18 patients) showed that Xalkori (crizotinib; a known ALK inhibitor but it can also inhibit MET and ROS) may be a good option for these patients. For all of these drugs, studies are continuing to understand how to best treat patients with different types of genetic changes.

Interestingly, there were a few studies showing that molecular testing with liquid biopsies had a similar outcome to using tissue biopsy. This was shown both specifically for understanding resistance to EGFR-targeted therapies as well as more broadly for finding cancer mutations across tumor types.

Immunotherapy:  In general, due to the long-term benefits of Opdivo (nivolumab) and Keytruda (pembrolizumab) seen in a small percentage of NSCLC (15-20%), researchers are trying to figure out if combining these with other drugs can improve the number of people who respond.  These drugs are being combined with everything – other immunotherapies, targeted therapies, radiation, and chemo.  There were many studies but it is still early days for these combinations and it remains to be seen how to best combine these drugs to improve patient care.

From a patient perspective, there was also an interesting talk on how patient reports of the side effects they were experiencing on a mobile app allowed clinicians to identify recurrences sooner and at lower cost. This actually led to improved survival.  This study was done in France but the presenter said the software will be more widely available in 2017. Importantly for our community, this shows how significant your voice is in your treatment journey. Speaking up honestly about side-effects, how you are feeling and your concerns can make a major difference in your care.

If you have questions, please leave a comment below. You can also call our HelpLine at 1-800-298-2436 or email support@lungcanceralliance.org to discuss anything related to lung cancer. We are here to help!